Sunday, April 15, 2012

Final Blog Message

Dear Family and Friends

This will be the final entry on Rays ‘Big C’ blog. A sad moment for me, not only because it marks the end of Ray’s journey, but also because keeping it updated (with Ray) and reading its messages had become almost a daily ritual.

I want to send everyone a huge THANK YOU for all the care and support you have given our family over this 3 year long journey and in particular in the time since Ray’s passing.
The flowers, food, gifts, cards, prayers, emails and support in many other caring and practical ways has been, and is, received with heartfelt gratitude.

Thank you, also, for the generous donations people have made to Marli’s cancer fundraising project “One Thousand Cranes”. To date over $3,600 has been donated and Marli, and her friend Tegan, have completed 915 cranes.

Several people have requested I put the tributes that Andrew, Tahnee, Marli and I made to Ray on this blog site, and they are attached at the end of this message.

I can’t end this Blog, however, without including some words from Ray. As Daryl indicated at Ray’s funeral service, Ray had spent quite a lot of time thinking about and putting together what he wanted at his service. The music, in particular, was very important to him and he not only chose the pieces, but wrote down why they meant so much to him. I thought this was a particularly important one to share with you all:

INXS: Afterglow (4.11) heartbreakingly beautiful words that speak of letting go: “touch me and I will follow in your afterglow, heal me from all this sorrow as I let you go.” This is firstly for you Margaret and then everyone else, please don’t be afraid of this death experience. Fyodor Dostoyevsky in Crime and Punishment said that, “pain and suffering is inevitable for one with a large intelligence and a deep heart.” It’s only as you hold on that sorrow increases. Let me go and journey. Sorrow is about trying to hold on, let it go, it’s ok.

Finally, I would like to end by repeating the committal from Ray’s funeral service:

It is often said – ashes to ashes and dust to dust ...
And we say – Ray be free, be strong,
be proud of who you have been.
Know that you will be mourned and missed;
that no one can replace you,
that you have loved and been loved.
Pass the gates, enter the dark without fear
and rest until we meet again.
Go in peace, beloved Ray,
travel safely with our love into the mystery of God. Amen

And as Ray would often end his messages ~
Blessings to you all
With much love
Marg x


Tributes to Ray from Friday 30th March 2012


From Tahnee:


I had a long think about what I wanted to say today. There was an empty page in front of me for a long while. I realised that it was because you can’t easily put Ray Ollerton into words. It’s just physically impossible. Sort of like trying to fit a mountain into a glass jar. (Even though Uncle Dave says that it could probably fit. You’d just have to get a glass jar big enough.) And so I tried to think about what dad meant to me.


He told me once that God isn’t just a big man sitting in the clouds granting people’s wishes, he said he believed God is the happy things in life, the name we have for when our good side shows. I believe that...but sometimes I wish there was a big man in the sky, saving the good from bad, but then, who’s to say who’s good and who’s bad? And that’s hard, because everyone has a God inside of them. We just need to find it and make the most of it.

To me dad was the kindest person I knew. He was an encyclopaedia, dictionary and history book all in one, he made me laugh so hard I would cry, but there were times he would make me cry so hard I wished I had a sledge hammer on hand. I know now he only made me feel that way because he loved us so much. He taught me ninety five per cent of what I know today, and no matter how long I live - I will grow to know not even half of what he knew. I have so many great memories of him - I cannot begin to name them all.

One of dad’s favourites was John Lennon who once said:
“When I was 5 years old, my mother told me that happiness was the key to life. When I went to school, they asked me what I wanted to be when I grew up. I wrote down ‘happy’. They told me I did not understand the assignment, I told them they didn’t understand life.”


I know what dad would want if he was here right now. He would have wanted us to cry, he would have wanted us to laugh, and at times he would probably have told us all to eat some concrete and harden up. But mostly he would have wanted us to be happy. He is the God inside of me, he’s in my heart and home and he will never ever leave. He would have wanted us to let go, but not forget. And now I know, wherever he is, or whatever he’s doing, be it having a party with Brett, or reading stories to gran-gran, he is happy – and he has made me so, too.


From Andrew:


Everyone knows who my dad is.
Loving, committed, honest, listened – maybe too much, definitely talked too much and definitely thought he knew too much.


When he met someone, it didn’t matter where it was, he just had to know their life story and then analyse it.

17 years together and 17 years apart makes it so very hard, but I have been gifted two beautiful sisters and a fantastic stepmother.

To me, dad hasn’t changed but he certainly has developed. He will always be remembered and never forgotten.


You will always be my best mate.


From Marli:


Dad never judged someone by their cover; he always had an open heart to everyone. Although I have spent all my life with dad so far, it still has not been enough. When Dad had a task to do he always did it with a good heart even if it was something he did not enjoy. His gardening skills were extraordinary. All the native trees and flowers dad had planted to make our home feel like home. He always gave people the confidence to speak out and help them with their troubles. He always made people welcome and treated them like they were his own family. Even though it now feels like Dad has just gone on a holiday and will return any time soon, I know he won’t and I am going to miss him so much… so I wrote this poem for him.


God brings us into the world so very young and small.
He brings us into life because it’s a blessing to us all.
He lets us love and care with our hearts open wide.
And with a snap of his fingers we are old and very wise.
But life cannot work without danger at its midst.
Because no one lives forever - but no one does not live.

Life is like a wooden boat sailing out to sea.
Sometimes there’s a pretty rainbow for us all to see.
Sometimes there’s a windy storm and the thunder scares us all.
And as the storm is blowing strong it sends us down below.
Sinking to the ocean floor is like saying our good byes.
No one lives forever - but no one does not live.

Shipwrecks mostly happen when there are lots of lies
Looking like a shipwreck is a bad way to get by
Then someone comes along with a very pretty rose
And as Dad said “In every shipwreck there is a treasure trove”
Everyone has good days and bad - but.
No one lives forever - but no one does not live.

From Marg:


At the time I met Ray I was going through a difficult time in my life and I was somewhat stuck. I had even resorted to seeing a Tarot Card reader to try and find out what to do next. Although she had no magical answers, during my session with her she kept referring to a strong male presence that would change the course of my life – and so Ray did when he entered it a couple of months later.

From the moment I met Ray on a cold, rainy Easter Sunday night in 1990 in his student share house in Oakleigh, I never again felt lonely or unfulfilled or unloved. Yes, there were many times, over the years, when we disagreed, argued and fought and I thought I felt lonely and unfulfilled and unloved, but deep in my heart I knew this wasn’t true.


From the moment I met Ray he was my challenger to get the most out of life, look at it positively and take up its opportunities. More often than not, my doubts and unwillingness to go along with his many and varied plans and ideas came from my own fears and intimidation. Ray showed and gave me the courage to overcome many of these fears and the strength I feel now, and throughout the long journey of his battle with cancer, is very much due to him. This is also true for our girls – Tahnee and Marli.


I often felt Ray and I were like Ying and Yang in our relationship – Ray being “more, more, more and lots of big ideas”, and me being “less, less, less and do we really need to do this?” But despite this, we worked harmoniously together and achieved a lot in our married life to be proud about, not the least of which being the beautiful Tahnee and Marli – who Ray was so proud of, as he was of Andrew – his gorgeous son. They are shining examples of his loving care and guidance.


Throughout our 21 years together, Ray always managed to keep me on my toes and I was never sure what he might be cooking up next or what might be around the corner.


Without Ray I doubt that I would have done or experienced many of the wonderful things we shared together as a couple and as a family. I thank him for helping me to explore new ways of thinking, expanding my knowledge by encouraging me with books and ideas, broadening my appreciation of music and food, and introducing me to people I would never have taken the time, or had the confidence, to get to know - but for Ray.


I thank Ray for building us our beautiful home, for the wonderful holidays we had and the travelling we did together. I thank him for his passion, enthusiasm, vision and sense of humour. But what I thank and loved Ray for mostly, was the way he always wanted and worked hard for us to be and stay together as a family.


Ray was both the rock upon which I stood so firmly and the wind beneath my wings.


Ray, my courageous, stubborn, battler - you always had people intrigued with your tenacity, optimism, openness and strength of character, but no more so than in the final stages of your long battle with that deadly cancer. Even to the end you had a sense of humour, insightful observations, calmness and appreciation of the beauty of life - despite what was happening to your body and the debilitating effects of all the drugs you were taking. You were the epitome of someone who truly sucked the marrow out of life – right to the very end. Rest in peace, my love, but if you can’t do that – pester the hell out of everyone in your new world. Our life together here, will be a cherished treasure buried deep within my heart.

Tuesday, March 27, 2012

Dear Family and Friends

The funeral for our beautiful Ray will take place:

Friday 30th March
11am
Mount Alexander Funerals
12 Campbell Street
Castlemaine

In lieu of flowers, we invite you to make a donation to the "One Thousand Cranes for Cancer" fundraising project that Marli has been working on for the past 12 months. Envelopes will be available at the entrance of the Chapel or log onto: http://vic.cancercouncilfundraising.org.au/onethousandcranes

Love
Marg

Monday, March 26, 2012

Dear Family and Friends

Our beautiful Ray is finally at peace.

He slipped away today around 12.30pm while we were all sitting outside on the decking enjoying the sunshine.

We are all in agreement he is the most peaceful he has looked for some time.

Love to you all
Marg, Tahnee, Marli & Sheila
xxxx

Thursday, March 22, 2012

A lot has happened since we posted Ray's last message.

Yesterday, Ray asked the doctor to put him on the medication that induces a restful sleep - and for most of the time - that is what he is doing now. There are still times that he comes out of the sleep and is relatively lucid, but generally they don't last long.

I was able to get the girls from school before they added the drug to his syringe driver and we had a lovely hour before he drifted off into sleep.

Sheila, the girls and I are keeping a peaceful vigil and are supported by our friend Sue and the wonderful palliative care and district nurses from Castlemaine Health to keep Ray comfortable.

Be assured I read Ray your email and blog messages. I was reading Ray a prayer from a friend today, and just when I thought he had gone back to sleep, he surprised me by joining in with me at the end to say 'Amen'.

Another lovely moment today was when the girls were giving him a shave - Marli was soaping Ray's face and Tahnee was doing the shaving. He obviously thought they were taking too long and said "give it here" and commenced to finish the job. We all had a good laugh.

Love to you all
Marg

Saturday, March 17, 2012

My core body strength has deteriorated now to the point that I cannot walk without another person (or even 2) assisting me. KISS. The morphine makes me drowsy and at times hallucinatory and I have been caught out saying some things that make no sense at all - at which we all laugh about. I can still manage a good jibe and joke.

Apart from that, the sun is shining today after some torrential (but welcome) rain the last couple of days and all is well in my world.

Love Ray

Saturday, March 3, 2012

Have just spent 2 nights in hospital as the pain had become unmanageable again using just the oral morphine. I am now on a morphine pump, which has helped tremendously, but at times, I still need extra morphine - especially during the day. Marg has been shown how to administer the extra morphine when I need it - which means she (or someone else) has to be with me 24 hours a day. To help her in this role, and give her some time to be able to do other things, our good friend Sue (who is a nurse) has volunteered to be the other person who stays with me.

In many ways, this is an acceptance of the journey that we chose many months ago - as my body deteriorates, I am now putting in place my support team. The palliative care team has been wonderful and has organised a special recliner chair and hospital bed for me at home. I still want to use my own bed at night - but the hospital bed is great as a day bed as it allows me to elevate my legs at the proper angle and, as a result, the fluid retention I had in my feet and legs has now deccreased.

Having the constant stream of morphine going into my body makes me even drowsier than I was before so if I am unable to take your calls when you ring, please understand that it's not because I don't want to talk to you.

Blessings to you all
Ray - also Marg, Tahnee, Marli & Andrew

Tuesday, February 21, 2012

On reflection, my bowel cancer seems to work at two levels - one, the illness is quite visual - as my body progressively debilitates, e.g. my stomach is distending as the tumors are growing physically quite large and noticeable and I am losing body tissue.

The second part of the illness is what I call the 'creeping effect'. That is, very slowly and all so gradually I feel myself weakening, but the affects each day are extremely minimal, but nontheless cumulative. For instance over the last month, I had thought it would be all right to walk by myself without a cane, but my second fall, within as many weeks, has proven that I cannot walk without assistance now (a little bit of stubborness involved here too).

Being famously supported by my family and a small and intimate number of friends.

Despite the above, enjoyed a wonderful concert last Thursday at the local Anglican Church listening to two classical guitarists - Leonard and Slavo Grigorian. Two weeks before that ventured down to Melbourne for the first time in over 3 months to see the MTC production of "Summer of the Seventeenth Doll". So in amongst all my tiredness and so-called debilitation I am still managing to enjoy some special outings.

Apart from the occasional mid-30 day, I have been enjoying the fine weather watching the honeyeaters and other local birds flitting in and out of the bird bath in our garden; developing from fledglings into adulthood.

Still journalling and, once a week, a close friend comes up with his video camera to spend 10 minutes recording some of my reflections. Hopefully a legacy for my family in years to come.

Thank you for the many emails, cards and letters I have and continue to receive. It would be a daunting task for me to answer them all, but please know that I am deeply grateful and thankful for all the prayers, personal stories and best wishes you send my way.

Love and best wishes
Ray

Tuesday, January 31, 2012

I have been very mindful lately that my core body strength is diminishing and even though my mind is telling me "I can do this", my body is not allowing me. For instance, we went to Bendigo to the movies on Saturday with 3 friends and then on to an Indian restaurant for dinner. We couldn't get parking near the restaurant so ended up walking 2 blocks, which was a considerable strain for me and I ended up paying for it the next day.

My feet are quite swollen now with excess fluid caused from a combination of my organs not working as well and lack of exercise. The very hot weather hasn't helped. Marg gives me a foot massage each day to try and help reduce the swelling. My stomach is also quite distended and very hard with the tumors.

Spending a lot of time seated in the lounge room reading and snoozing. The medication is continuing to have quite an affect on my day, but it is still keeping the nausea and pain at bay. Marg has gone back to work, tentatively, 3 days a week and I managed to make a steak bernaise with roast vegies for dinner tonight. I'm really appreciating the effort to cook a pleasant meal for the family - even if it takes me 3 times as long as it used to.

The girls start back at school next week, so we are gearing up for that. Sheila (my mum) will come up Mondays and Tuesdays to give us a hand.

Blessings to you all
Ray

Tuesday, January 10, 2012

Had a wonderful Christmas day with 10 family members here at home - we all mucked in for a prawn and salad lunch followed by a more traditional Christmas dinner later in the day. In the evening we flamed the Christmas pudding. The warmer weather meant some of us did some good old Aussie activities like swimming in the dam and catching yabbies.

I got up early on Boxing Day and cooked ham, eggs and hollandaise sauce for everyone, then the women-folk took off to the Boxing Day sales in Bendigo while the men stopped home and watched the Boxing Day Test.

Also enjoyed a very pleasant New Year's eve, firstly with some friends who had hired a B&B just out of town for the night - the attraction being a large heated spa which overlooked the hills and surrounding countryside. We then went on to some other friends (also our neighbours), who had invited us to their place for a swim in their pool and a BBQ dinner. I surprised myself and everyone else by staying up until 1.30am.

The last 4 weeks, my health seems to have improved immensely. I have no muscle strength and struggle to negotiate any more than 2 or 3 stairs at a time without assistance and can only do the simplest and easiest of tasks now, but I'm eating and sleeping very well and have regained some colour in my skin. There is no pain or nausea at the moment although I can feel the tumors enlarging and hardening in my stomach. My left leg is quite numb at times due to the compression of the nerves from a secondary tumor in my sacrum. I manage walking quite well, but sometimes need the aid of a walking cane.

At the end of the day it's all about quality of life and although I sometimes feel quite sedated with the affects of the drugs, I continue to enjoy the luxury of a normal family day.

As I have been feeling much better, Andrew (my son) decided to go home on New Years day to reconnect with his life in Perth and take care of his home maintenance and gardening business. He did an extraordinary job in looking after our property while he was here.

My next goal is a Men's Group get together on the 17th January and the wedding of a friend's daughter on the 21st January.

My prayers and best wishes to you all. Hopefully you manage to find some peace in all your deliberations as you enter 2012.

Ray

Monday, December 19, 2011



A good friend of Marg’s recently commented that: “Ray always likes to exceed expectations” and I have certainly lived up to this reputation this week. Could it only have been 4 weeks ago that things were looking quite desperate? This week my skin colour has almost returned to normal and my appetite has also returned - eating normal sized small meals and even gained 2kgs. On Saturday night our whole family enjoyed a friend’s 18th birthday party – not getting home until 11.30pm. An evening of bush dancing - although my lack of strength precluded me from participating in the dancing, I enjoyed listening to the music. On Sunday, Marg and I went to the Theatre Royal in town to see the Woody Allen film “Midnight in Paris”. Of course, all of this is due to my being well on top of my pain and nausea management, and a bit of good old north of England determination and stubbornness.
Andrew is still with us – which only adds to my overall sense of well being. He has been fantastic keeping our garden in tip top condition and doing all those jobs I am no longer able to do.
Looking forward, more confidently now, to celebrating Christmas with my family at home. My other short term goal is the girls school Awards Night on Tuesday. Both are receiving Honours certificates as well as awards for music.
For obvious reasons we will not be sending out our usual Ollerton Family Christmas newsletter. So our Christmas good wishes are being sent to you all electronically this year.
Again we would all like to thank everyone for their prayers and good wishes during the year. Hopefully the blog site has kept you informed on how I have been progressing with my illness, but also letting you know some of the more joyful and celebratory parts of our family life. Even amongst our saddest moments, we can often celebrate something very special if we look for it. As we celebrate new life in all its fullness this New Year may you find a sense of peace, calm and wonderment in whatever you pursue.
Love and best wishes for a joyous Christmas ~ Ray, Marg, Andrew, Tahnee and Marli Ollerton

Tuesday, December 6, 2011

My doctor has finally got on top of my pain management and together with the radiation treatment my quality of life has improved dramatically since my last blog.
Eating fairly well - lots of small meals and sleeping reasonably well as most of the medicines are sedating. Spending my days reading, journalling, keeping in touch with family, enjoying my garden and resting. The weather is so beautiful at this time of the year and I'm able to sit outside on the decking and enjoy it!
It has been sensational having my son Andrew here from Perth. The last two evenings it has just been the 5 of us. Andrew has been working hard in my garden and cleaning out our shed - a job I had been planning to get around to for over 10 years.
Working towards small goals i.e. Marli's birthday on the 12th, our 20th wedding anniversary on the 14th and then Christmas.
The Palliative Care Nurses have also organised a wheelchair for me so I will be able to get out now and then. Used it last Saturday night to go down to our local Botanic Gardens with the family.
Thanks sincerely to all of you who read the blog and send prayers, best wishes and positive vibes out to me.

Monday, November 28, 2011

Last Friday I had a burst of palliative radiation that today (Monday) I can feel the positive affects of. The treatment has relieved major pressure of the tumor on my sacrum which carries nerves running down my left leg. Today, even though I am still fairly tired, the pain level is at zero - which is worth it's weight in gold. I even managed 10 minutes in the garden this morning, watering some pot plants - the first time I have been out of the house for 10 days (apart from the 2 trips to Bendigo Radiology).

Marg has stopped working now, and is staying home to care for me. My mum, Sheila, was also up last week to help out and do what mothers do best.

My son, Andrew, arrived from Perth this morning. It was quite an emotional reunion and it is wonderful to have him here.

A good friend of mine, Gordon, sent me a poem he wrote last week when my condition was quite serious. I want to share it with you all.

And I don't know .... anything!
Except, outside the sun is setting
And my friend is dying
And there is the white noise, Ray
The hush over the rhythm of the music,
We are the white noise behind it all
And outside the sun is setting
And young girls dancing,
And Life and Love and Music
And the music is white
And beautiful
And outside
The sun is setting.

Every day now is a day to be celebrated. Blessings to you all. Ray.

Wednesday, November 23, 2011

Unfortunately things have taken a turn for the worse. Last weekend I was quite sick with nausea and extreme pain, both which I couldn't seem to get under control.

My doctor has since prescribed a new level of pain management and anti-nausea relief. Taking my medication on a strict regime for the last 48 hours and things seem to be reasonably under control again.

The tumor in my sacrum (groin) is also compressing a large bunch of nerves - referring intense pain down my left leg and leaving me with a constant feeling of pins and needles - making it hard to walk. I certainly can't drive my car any more.

My doctor has referred me for some palliative radiotherapy for the sacrum tumor which will hopefully alleviate some of this pain.

I am reconciling the loss of my freedom - spending my days now lying on a mattress in the lounge room looking out at the bush surrounding our house when I'm not sleeping (which is a side affect of the stronger pain medication).

Marg and I receive graciously the way all of you are sending your love and prayers in many varied and different ways.

Tuesday, November 15, 2011

Dear Blog Readers

October has seen quite a change in my medical/physical condition. I started vomiting and dry retching, even though I was taking anti-nausea tablets. I have changed my diet and am eating very small amounts, but regularly and am now managing to keep my food down most of the time and only dry retching once or twice a day. I have lost around 6kgs.

I had a CT scan today and the scan confirmed what I had thought, that the liver is chock full of tumors and is slowly breaking down. One of the reasons for me being sick and nauseous has been the liver's inability to metabolise the bile salts in my body. The bile salts have been displaced into the pores of my skin, also making me extremely itchy. This seems to have moderated somewhat in the last week since I have been taking anti-histamines.

The last two weeks, I have had increasing pain in my buttock - of all places. The CT scan also confirmed I have a tumor in my sacrum. My GP has upped my medication to a slow release pain killer and that is helping.

My spirit is strong and I am still as cheeky as ever, stirring up the family at every opportunity! My days are spent doing very light duties in the morning and resting and reading in the afternoon.

Blessings to you all
Ray

Sunday, October 9, 2011

Enjoyed a Spring Celebration on Saturday 24th September at the Barkers Creek Cricket Oval with 120 family and friends. We planned the day to celebrate Spring, life in all its fullness and in some ways it was my "Awake". I wanted to be a part of celebrating my life with the people who have encouraged and nurtured me over the years. Some friends and family were sorely missed, but they were with us in spirit. The day was filled with creative expression via music, art, poetry and good food.

My physical condition has deteriorated in the past couple of weeks. I am still able to get around the house, drive around to do errands etc. but have more of a wish to stay close to home and spend a lot of time resting on the couch. Pain levels have gone up although managed with medication. It is taking a while to moderate my nausea levels. I have 3 lots of anti-nausea medication. Each day is a new day. Can't let the physical side of my illness overpower me. I'm reading a lot, still catching up with good friends and grabbing the occasional shiatsu massage and gentle swim. Also listening to music is a great pleasure. I have enjoyed a couple of retrospective days playing my old vinyl LP's and have almost completed my biography.

It's been great having the girls around during the school holidays, watching them enjoying time with their friends. Enjoyed my birthday on 4th October with an evening meal with just the 4 of us at a local pub. Reaching 58 - another milestone passed. Marg and the girls have been very supportive and are aware of me needing spaces to rest. I'm keeping in touch with Palliative Care fortnightly. Although I only look one or two days ahead now, I am anticipating Marg and I celebrating our 20th wedding anniversary on 14th December.

Love to all and again your prayers and thoughts are much appreciated.
Ray

Monday, September 5, 2011

Had been feeling really well since my last blog, however things took a slight turn for the worse last Wednesday around lunch time. I felt faint and nauseous and headed off to the doctors for treatment. The nausea settled, but on Thursday pain levels increased in my chest and abdomen area. Taking maxalon tablets for the nausea and off to the doctors again tomorrow to look at pain management. I am breathing shallowly to minimise the pain in my chest however, it's not stopping me from spending time in the garden and continuing with volunteer work at the school and hospital.

Enjoyed a wonderful weekend with Marg after dropping Tahnee and Marli off at the airport to go to Perth to spend a week with their brother Andrew.
We continued onto Melbourne, staying in an apartment in Little Bourke Street in Chinatown for 2 nights. We enjoyed the Vic Markets, a movie at the Nova and the Tim Winton play "Rising Water" at the Playhouse and then dinner with friends on Saturday evening.

You would have been proud of us on Sunday morning reading the Sunday papers in bed and enjoying a large fruit platter before heading off to St. Paul's Cathedral for a choral communion service.

Faith still strong and determined and I have a walk planned with some friends this Friday and hopefully going to the West Coast/Collingwood game at the MCG on Saturday before picking the girls and Andrew up on Saturday night.

Thank you all for your kind and generous remarks and ongoing support of thoughts and prayers. They are very much appreciated.

Ray

Friday, August 5, 2011

Each day now is in some ways a hurdle to be leaped. Slowly and grudingly coming to terms with a shortened life. I have lost any focus on the future and am more concerned about each day's events, embracing that cliche "to live in the moment". Although saying that, two future dates I am looking forward to is December 14th - our 20th wedding anniversary and Christmas day with family.

I am feeling some soreness in my stomach - a bit like a stitch or digestive pain - and continuous very low nausea, but my resilience is strong and my faith remains active and alive and nurturing. I continue to see my supervisor and I'm enjoying a book club and my continuing relationship with men's group.

Also managing to do some volunteer work (2 hours a week) at the girl's secondary college supporting the welfare team, running a small program with half a dozen middle school boys. Also start delivering library books to hostel residents at the hospital next week. Can't keep me down!

My family continue to support me and cajole me in the never ending energy sapping experience of raising teenage children. Family life is great with sport, markets, school etc. etc. The girls are off to visit their brother in Perth in early September for a week. They want a week with their brother without parents, which frees Marg and I up to have some time together.
Continuing to write my biolography and I've taken an interest in my family's geneology. Continued support from close friends is sustaining.

Again thanks to all of you for your ongoing prayers and support.

Blessings
Ray

Monday, June 13, 2011

Went down to the Western General Hospital last Thursday to meet with Prof. Gibbs who gave us some not very good news.

The results of the latest CT scan show that the tumors in my liver have grown by approx. 1cm. This means I now come off the clinical trial. I have been referred back to Bendigo Oncology for further chemotherapy.

Marg and I felt pretty flat driving home. Although we expected this news, we were hoping it would be further into the future.

My prognosis now is 6-9 months. Prof. Gibbs did say that a combination of some new drugs plus Irinatekin (chemo) have helped some people in terms of extending life.

I am almost certain that I do not want to take part in any more chemo given it's debilitating effect. I am thinking that perhaps now is the time to continue to live every day as fully and creatively as I can and await my destiny.

Over the last 12 months my body has been assaulted by various drugs. I'm feeling like I can regain some dignity now in allowing my body to recover for a short while.

While I have been enjoying writing my biography and uploading photographs (thanks to Marg's comptuer skills) I feel more of a pressing need to try to get it finished.

Love and best wishes to you all.
Ray

Tuesday, May 31, 2011

A few photos of my journey:
In Barcelona's "Sagrada Familia" Basilica with some people I met
from the hostel I was staying in.







A quite beer after a 3 hour tour of Barcelona's "Old Quarter".









Cake and coffee, "...on Ilkley Moor" with Dad and walking on the Lancashire moors on a wet, windy day with my cousins and their son Toby

Been home for 5 days and recovered from jet lag. The flight from Singapore was three quarters empty so had the luxury of 3 seats to spread out on. Went straight to treatment the morning I arrived home, thanks to Jamo, a friend who ferried me from Tullamarine to Western General in Footscray. Holidays were wonderful. It's a different experience travelling alone compared to family hols and gave me time to sit with Dad for gentle times. I have been keen to ensure that I minimise regrets. One regret I didn't want was to get too sick to travel and then wish I had gone sooner to the UK. I possibly didn't need the anxiety of working in and around Dad's illness, but it left me satisfied knowing he has a support network and loving family around him. Dad and I were able to chat intimately about past times and future hopes. On my last day in the UK we visited his wife's (of 40 years) gravesite. It was quite moving watching this proud 82 year old man, flat cap in hand, resting on a cane, weeping gently and reflecting warmly on his relationship with her. Dad remarried after Mum and he separated in 1959.
Visits to world heritage sites, 900 year old monasteries and the northern England moors were amazing as were the five days in Barcelona experiencing Spanish culture and seeing something of Gaudi's genius. I left for Australia with mixed feelings, knowing it will probably be the last time I see my UK based family, but we were all emboldened and reassured that whatever happens in the future, the ongoing memories of our time together will sustain and comfort us all. Memories of people and experiences fade into the mists of time, but can be retrieved and relived. I feel all the better for my time with these special people. I am struggling to upload some photos to the blog, will do so soon with help from my 13 year old daughter Marli!!
Blessings to you all