Have just spent 2 nights in hospital as the pain had become unmanageable again using just the oral morphine. I am now on a morphine pump, which has helped tremendously, but at times, I still need extra morphine - especially during the day. Marg has been shown how to administer the extra morphine when I need it - which means she (or someone else) has to be with me 24 hours a day. To help her in this role, and give her some time to be able to do other things, our good friend Sue (who is a nurse) has volunteered to be the other person who stays with me.
In many ways, this is an acceptance of the journey that we chose many months ago - as my body deteriorates, I am now putting in place my support team. The palliative care team has been wonderful and has organised a special recliner chair and hospital bed for me at home. I still want to use my own bed at night - but the hospital bed is great as a day bed as it allows me to elevate my legs at the proper angle and, as a result, the fluid retention I had in my feet and legs has now deccreased.
Having the constant stream of morphine going into my body makes me even drowsier than I was before so if I am unable to take your calls when you ring, please understand that it's not because I don't want to talk to you.
Blessings to you all
Ray - also Marg, Tahnee, Marli & Andrew
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11 comments:
Raymond you are a brave man we are praying for you.
Love
Tony and Betsy
Blackpool
Uncle Ray.. my love has "always" been where ever you are - I just want you to know that.
Luv & Hugs, Trac xx
Hi Ray
Pleased that you are back home in your tranquil surroundings and have mustered your support crew around you. If you would like a rusty old nurse to support your support team please call on me (Rosie).
Marg, I really mean that - I'd be very happy to fill in for you and Sue if appropriate.
Love to you both and the kids.
Rosie and Robyn
Just want u 2 know that we love u, and your beautiful family more than words could ever express, Glad 2 hear that u have lots of love and support around you.Always together, never apart, maybe in distance but never in heart, Luv u brother,and hugs n xxxx2 u all Pat n Steve :)
Ray, You are extraordinary ! In case no one else has said it clearly today.... courageous too; yes, and stubborn - well surely that must be ok - suffer from a surfeit of that myself :-) Please know I think of and pray for you daily; sending you strength via sources unsearchable and full of wonder, with much love. Good to hear of your hosp bed set up at home - sounds really helpful.
Thinking of Marg, Sue and the girls too as they care for you - the best ! Worth their weight in gold, as we know !
Big (gentle) hug X Ros Dawson
When things get tough... I think of your bravery and fight. You are one hell of an inspirational man who is in my thoughts daily and in my preys to the universe every night... Hats off to your support crew... amazing x Love to you and all the Ollies always and forever x Taz x
Hi Ray,
I have read your Blog with much interest and send best wishes to you from the Gisborne Secondary Chaplaincy Committee. You are an amazing man. Our thoughts are with you and the family.
Kind Regards Bronwyn
God bless.
Ray ...what a fella! was concerned when you said you were in great pain and am so glad you have been helped to be more comfortable with the pump and the love and care from your special 'nurses'
Dear friend how lucky we are to have you as our friend...May God hold you in the palm of His hand through these days and nights...and also Marg and the girls ...Love Ronda & John
Uncle Ray, its georgia. I know how much you are suffering and i wish that we didn't live so far away, i love you loads and you are an inspiration to me. lots of love xx
Dear Ray, wishing you comfort in this last stage of your life. And peace to you all...May your shared love sustain you all through these significant and poignant days.
Shalom my friend.
Ros W.
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